Clinical Medicine Journal
Articles Information
Clinical Medicine Journal, Vol.4, No.2, Jun. 2018, Pub. Date: Aug. 10, 2018
Influence of Sex Difference on Burden of Caregiving, Social Support and Quality of Life of Informal Caregivers of Patients with Cerebral Palsy
Pages: 15-21 Views: 1391 Downloads: 342
Authors
[01] Chidimma JenniferAhanotu, Department of Medical Rehabilitation, Faculty of Health Science and Technology, Nnamdi Azikiwe University Nnewi Campus, Nigeria.
[02] Peter Olarenwaju Ibikunle, Department of Medical Rehabilitation, Faculty of Health Science and Technology, Nnamdi Azikiwe University Nnewi Campus, Nigeria.
[03] Adebisi Isiak Hammed, Department of Physiotherapy, University of Benin Teaching Hospital, Benin City, Nigeria.
Abstract
Study aim: The study investigated the influence of sex-difference on burden of caregiving, social support and quality of life of informal caregivers of patients with CP. Material and methods: The study adopted a cross-sectional survey research design. A total of 78 informal caregivers participated in this study. The quality of life was assessed using the World Health Organization Quality of Life Bref (WHOQOL-Bref). Also, social support was assessed using Multidimensional Scale of Perceived Social Support (MSPSS). However, the level of burden of caring for CP patients on caregivers was estimated with the use of Caregivers Strain Index (CSI). Mann Whitney U-test was used to test for the influence of sex difference on the caregivers’ level of burden, social support and quality of life. The statistical significance was accepted for a p value of <0.05. Results: The outcome of this study showed that sex of the caregivers had substantial influence on the level of burden of caregiving and, physical, psychological, social and environmental domains of their quality of life. However, sex-difference of caregivers has no significance on their level of perceived social support. Conclusion: It was therefore concluded that sex-difference of informal caregivers of CP predicts the level of burden of caregiving and all domains of quality of life but cannot determine the level of perceived social support. It was thus recommended that World Health Organization Quality of Life Bref (WHOQOL-Bref), Caregivers Strain Index (CSI) and Multidimensional Scale of Perceived Social Support (MSPSS) measures should be introduced into clinical practice. Also, the clinicians/clinical staff should be trained in using and interpreting the measures.
Keywords
Gender, Caregiving, Social Support, Quality of Life and Cerebral Palsy
References
[01] Adegoke, B. O., Adenuga, O. O., Olaleye, O. A.& Akosile, C. O. (2014). Quality of life of mothers of children with cerebral palsy and their aged matched controls. African journals of neurological sciences, 33 (1), 1-10.
[02] Almeida, T. & Sampaio, F. M. (2007). Stress and social support in caregivers of individuals with cerebral palsy. Psic., Saúde and Doenças, 8, 145–151.
[03] Arnaud, C., White-Koning S. E. &Yurtsever, S. (2007). Difficulties experienced by families with disabled children. Journal for Specialists in Pediatric, 12, 238–252.
[04] Balbalogu, O., Basarat, A., Karadavut, K., Atesoy, N., Uneri S. (2013). The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety score. Europe journal physical rehabilitation medics, 49 (6), 15-22.
[05] Blair, E., & Watson, L. (2006). Epidemiology of cerebral palsy. Semen fetal neonatal medicine, 11, 117.
[06] Brehaut, J. C., Kohen, D. E., Raina, P, Walter, S. D., Russell, D. J., Swinton, M, O'Donnell, M. & Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?Pediatrics, 114 (2), 182-91.
[07] Button, S., Pianta, R. C. & Marvin, R. S. (2001). Partner support and maternal stress in families raising young children with cerebral palsy. Journal of Developmental and Physical Disabilities, 13, 61–81.
[08] Davis, E., Shelly, A., Waters, E., Boyd, R., Cook, K., Davern, M. &Reddihough, D. (2009). The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care, Health and Development, 36, 63–73.
[09] Eisenhower, A.&Blacher, J. (2006). Mothers of young adults with intellectual disability: multiple roles, ethnicity and well-being. Journal of Intellectual Disability Research 50, 905–916.
[10] Eker, L., & Tuzun, E. H. (2004). An evaluation of quality of life of mothers of children with cerebral palsy. Disability in Rehabilitation, 26 (23), 1354-9.
[11] Feldman, M., McDonald, L., Serbin, L., Stack, D., Secco, M. L. & Yu, C. T. (2007). Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research, 51, 606–619.
[12] Greenberg, J. S., Knudsen, K. J. & Aschbrenner, K. A. (2006). Prosocial family processes and the quality of life of persons with schizophrenia. Psychiatric Services, 57, 1771–1777.
[13] Hassall, R., Rose, J. & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: the effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research 49, 405–418.
[14] Kelman, H. R., Thomas, C. & Tanaka, J. S. (1994). Longitudinal patterns of formal and informal social support in an urban elderly population. Social Science of Medicine, 38, 905–914.
[15] King, G., King, S., Rosenbaum, P.&Goffin, R. (1999). Family-centered caregiving and well-being of parents of children with disabilities: linking process with outcome. Journal of Pediatric Psychology, 24, 41–53.
[16] Mastrian, K. G., Ritter, C. & Deimling, G. (1996). Predictors of caregiver health strain. Home Healthcare Nurse, 14, 209–217.
[17] Matsukura, T. S., Marturano, E. M. &Oishi, J. (2007). Stress and social support for mothers of children with special needs. RevistaBrasileira de Educação Especial, 13, 415–428.
[18] Milbrath, V. M., Cecagno, D., Soares, D. C., Amestoy, S. C. &Siqueira, H. C. H. (2008). Being a woman, mother to a child with cerebral palsy. ActaPaulista de Enfermagem, 21, 427–431.
[19] Okurowska, Z. B., Kułak, W., Otapowicz, D., Sienkiewicz, D., PaszkoPatej, G., & Wojtko-w, J. (2011). Quality of life in children and adolescents with cerebral palsy and myelomeningocele. Pediatric in Neurology, (In press)
[20] Ones, K., Yilmaz E., Cetinkaya, B., & Caglar, N. (2005). Assessment of the quality of life of mothers of children with cerebral palsy (primary care-givers). Neurological rehabilitation in Neural Repair., 19 (3), 232-327.
[21] Pelchat, D. & Lefebvre, H. (2004). A holistic intervention program for families with a child with a disability. Journal of Advanced Nursing 48, 124–131.
[22] Pfeifer, L. N., Silva, D. B., Lopes, P. B., Matsukura, T. S., Santos, J. L., & Pinto, M. P. (2013). Social support of caregivers with cerebral palsy. International journals, 1, 7.
[23] Raina, P., O’Donnell M., Rosenbaum P., Brehaut J., Walter S. D., Russell D., Swinton M., Zhu B., & Wood E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115, 626–636.
[24] Unsal-Delialioglu, S., Kaya, K., Ozel, S., &Gorgulu, G. (2009). Depression in mothers of children with cerebral palsy. International Journal of Rehabilitation Research, 32 (3), 199-204.
[25] Wanamaker, C. E. & Glenwick, D. S. (2005). Stress, coping, and perceptions of child behavior in parents of preschoolers with cerebral palsy. Rehabilitaion in Psychology, 43 (4), 297–312.
[26] White-Koning, M., Grandjean, H., Colver, A. & Arnaud, C. (2008). Parent and professional reports of the quality of life of children with cerebral palsy and associated intellectual impairment. Developmental Medicine and Child Neurology, 50, 618–624.
[27] WHOQOL, (1998). Development of the world health organization WHOQOL-BREF Quality of life assessment. Psychological medicine, 28, 51-558.
[28] Zimet, G. D., Dahlem, N. W., Zimet, S. G & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of personality assessment, 52, 30—14.
600 ATLANTIC AVE, BOSTON,
MA 02210, USA
+001-6179630233
AIS is an academia-oriented and non-commercial institute aiming at providing users with a way to quickly and easily get the academic and scientific information.
Copyright © 2014 - American Institute of Science except certain content provided by third parties.